I've had CFIDS for the past twelve years. It's in an acute phase right now and I'm:
1) extremely grateful for my family and closest friends, and
2) really fucking sick of feeling this way.
Pre-emptive strike: I do mild yoga and stretching; walk as far as I can without incurring relapse; have eliminated the foods to which I'm allergic; eat my fruits and vegetables; drink eight glasses of water a day; follow all of the latest research; take a daily multi-vitamin; don't smoke; have two or three drinks a year; consume minimum amounts of caffeine; have tried acupuncture; get two massages a month; and have seen some of the most knowledgable doctors in the region. I stay focused, remain optimistic, implement the best of western and eastern medicine, help those less fortunate, and maintain a lively, ribald sense of humor.
In spite of this, I'm wrestling w/ acute nausea, fever, swollen lymph nodes and I feel like my very active mind is trapped in the body of a ninety year old. And while none of this has affected my sense of style--I will *never* leave the house in sweats and a fleece hoody, I don't care how sick I am--the other ninety-five percent of me feels battered right now.
When I'm able, I'm going to shoot a documentary on CFIDS and launch an annual fundraiser. In the meantime, if you're interested, check out cfids.org for more information:
The CFIDS Association of America
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