Thursday, December 04, 2003

But you are heroic, Laura:

Laura Hillenbrand ("Seabiscuit") and I both have CFIDS (Chronic Fatigue Immune Dysfunction Syndrome). Vogue profiles her in its current piece, "Heroines Among Us: Extraordinary Women of 2003".

My fever is spiking now and cohesive thought is a joke, but here goes: Thanks, Laura, for writing such a damned good book, and for being a tireless (ha, ha) and erudite spokesperson for the CFIDS populace.

Vogue excerpt:

"After reading it," she says of the [recent New Yorker] article, which took [her] two years to write, "I think people understand that CFS [aka CFIDS] is not being tired at the end of the day, it's being afraid that you are too weak to breathe." Despite the obstacles she has overcome, in her mind she's no hero. "On the contrary," she says, "one of the frustrating things about being incapacitated is that your life becomes utterly selfish. You exist only to get your body to the next day. It's frustrating, not heroic."


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