Monday, November 29, 2010

I'm pretty damned fortunate nearly everyone in my life...

...understands at least the basics of CFIDS, including its severity and unpredictability.

Which is hugely appreciated, as I was too ill to attend Thanksgiving (marking the first time I've been so incapacitated I skipped a major holiday) or my friends' dinner party Saturday night. Except to walk the puppy, I've been unable to leave the house for days. Still on track with my upcoming deadlines, but I'm in so much pain it hurts to lift my head.

If you know me, you know this isn't a bid for sympathy. Far from it. I remain open about CFIDS because there are so many misconceptions surrounding it; the only way this changes is if those of us with the illness are honest about how we live. And it's as pointless to dwell on it as it is to hide it.

Really touched that my dad brought by holiday leftovers and that several friends volunteered to do the same. I'd gone grocery shopping before the worst of it hit, so I'm well-stocked, but still: I'm super-lucky in a lot of ways and this is one of them.

Laura Hillenbrand, lauded author of Seabiscuit and "A Sudden Illness", her essay detailing her life with CFIDS, has a new novel, Unbroken, receiving wide acclaim. (You can read a fine excerpt in this month's print version of Vanity Fair.) In yesterday's Washington Post, Hillenbrand discusses the intersection of CFIDS and writing:

And in the new Newsweek, the XMRV retrovirus and its possible causative or correlative role with CFIDS is examined:

I'm reminded of Chris Rock's line, that the last time science cured anything, "I Love Lucy" was still on the air, but like most of us, I'd be mighty thrilled with an even somewhat reliable treatment.

Good thing I can do my job lying down.

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